Learning to Love my Body and my Stoma Bag

27-year-old Caz Caines, from Newbury, Berkshire is a make-up lover and compliance administrator. We chatted to Caz who is sharing her story about her stoma bag as a way of celebrating her body, spreading self love and helping others… 

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How did you feel when you first had the bag fitted? Can you tell us about why and how you came to have it? I have had my stoma [a pouch placed over the stomach to collect waste products that usually pass through the colon] for six years now. I was really poorly and admitted to hospital with a very swollen stomach, turns out my large intestine was so stretched and my organs were shutting down. When the surgeons opened me up my large intestine split. They had to operate and create a stoma, which I named Krang. I was so scared and upset but relieved. I woke up from surgery with the bag, totally unexpected and a big shock. After I got over the initial shock, I felt relieved because I knew that I’d feel better in myself, this could give me a new lease of life.

IMG_0705Did you always feel so confident? Nope, definitely not! I found that when I had surgery my body changed so much – I lost four stone while in hospital as I wasn’t allowed to eat for 10 days. I really started looking at it differently as I now had this ridiculously big scar with added poo bag on my stomach, not something you see everyday. So I felt a bit self conscious at first, that didn’t last long though. I started blogging soon after, speaking to other young people with stomas and really trying to encourage others to see themselves as the attractive, positive person they are or soon could be.

What advice would you give to others who struggle to feel good about themselves? You just gotta think this is the only life you’re gonna have so appreciate yourself and focus on the things you like. I love make-up and creating different looks with that, it really does make me feel better about myself. Get your nails done, put on your favourite music. Surround yourself with wonderful, hilarious people. My friends helped me out so much when I was poorly, they’re absolutely brilliant people. You always need that friend who will tell you to stop wallowing, I like people who are forward, you need people like that in your life.

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How do you try to celebrate your body? Is Instagram a way for you to do this? I just try and appreciate it the best I can, I’m not one to deny myself a pizza every week. Instagram can be a way, my recent bag picture did get a lot of positive comments and attention which is great, social media is crazy! I have spoken to more people who had bags, there is a big network of Ostomates on Instagram, more people are showing their bags off. I definitely have my down days and hangs up like everyone, I try not to let it get to me, I just need to remind myself that my bag saved my life so I should be bigging it up.

Why do you think sharing your story and spreading body positivity is important? Because there are so many people out there who probably feel a little lost after surgery, you really don’t feel 100% so I just want to show people, it’s cool, you’ll get back to feeling good again! You just gotta embrace what you have, even those without bags! You have one body, don’t listen to the magazines, you don’t have to be a certain way. I don’t want people who have bags to feel like they’re ugly, nor the people who don’t have them to think we are. I get messages from so many young people saying I’ve helped them feel more confident, it’s just so great, it’s nice knowing you’ve helped someone just by saying what you truly feel.

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How have tattoos helped? I had tattoos before surgery, I’ve always loved them. I do have a piece which I got last year by Jody Dawber – it is a lady with two sets of eyes, as if to say ‘don’t see yourself through other people’s eyes’. I wanted to get something that tied in with my message of body confidence and my bag as well as looking fabulous.
When I get a new tattoo it’s exciting, I get such a rush from seeing it go from paper to skin – I can’t stop looking at it once it’s been done and definitely can’t wait to show everyone this fantastic piece of art.

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What tattoo plans do you have? The plan has always been heavy coverage, I love the look. I was a stupid 18 year old and started on a sleeve which I now can’t stand and I’m working on blacking out. I want to get more work by Jody, she is definitely one of my favourite artists as her style is so cute and distinctive, it also helps that she’s so easy to talk to and would put anyone at ease. I would also love another Danielle Rose piece, her work is so stunning, it takes your breath away. I follow a few artists on IG, it is one of the easiest places to find new tattooers, so I have my eye on a few people currently – Craven Tattooer, Max Rathbone and Aimee Lou are a few I’m loving at the moment.